I’ve been following for awhile because I found our symptoms to be so similar and funnily enough I have active SLE with mixed connective tissue disease and it took going to the Mayo Clinic to finally have someone identify my lupus was attacking my autonomic nervous system to cause severe POTS. Sjorgens is also a side effect for lupus in many cases (myself included). It’s such a vulnerable place to be to learn what might actually be going on, but also relieving because you’re one step closer to the correct treatment. Such a disarming feeling of stress and validation? I’ve literally had the gambit of the alternatives for treatment because mine’s advanced and would be happy to share resources of any kind as you move forward! Stay strong! Sending prayers and positive juju
I’ll put together some things for you because i honestly had such a hard time finding out information ten years ago when i found out and I’ve had to just collect over the years. Sadly we don’t fit in the system’s “box” of normal easily, which we know they love! Just happy to help the struggle 🫶🏼
Hey giving the fact that you have seen the both sides of natural and western medicine where do you stand on vaccines for your daughter? I would love your take on it please 🙏
Curious about your original diet intervention and how you modified carnivore. Been diagnosed with PMDD, fibromyalgia and arthritis. I could def do carnivore for a few months but I'm afraid I'll be stuck, i.e. that the elimination will over-sensitize me to all plants forever. Would love to read more about your experience.
Oooof I totally get the fear of sensitizing your body. My personal experience is that I personally just stopped being used to feeling horrible. Like the experience/symptoms when I eat certain things is the same, i just am no longer used to feeling horrible. I hope that makes sense.
So sorry to hear you’re dealing with issues of your own!
I’ve been misdiagnosed so many times that I don’t even know what to believe I have or don’t have anymore. I am currently in the midst of a huge (Lupus?) flare. Will be following along because finding good recipes that are tasty, not too much work, and my entire family enjoys has been exhausting.
I know the feeling. I almost didn’t even want to share this information because I’m sure in a couple years I’ll find something else out. But hey, that’s the journey. So excited to share recipes with you!
I’ve been following for awhile because I found our symptoms to be so similar and funnily enough I have active SLE with mixed connective tissue disease and it took going to the Mayo Clinic to finally have someone identify my lupus was attacking my autonomic nervous system to cause severe POTS. Sjorgens is also a side effect for lupus in many cases (myself included). It’s such a vulnerable place to be to learn what might actually be going on, but also relieving because you’re one step closer to the correct treatment. Such a disarming feeling of stress and validation? I’ve literally had the gambit of the alternatives for treatment because mine’s advanced and would be happy to share resources of any kind as you move forward! Stay strong! Sending prayers and positive juju
I would absolutely love to see your resources. I believe we have the exact same diagnoses (without me getting a formal one) 💛
I’ll put together some things for you because i honestly had such a hard time finding out information ten years ago when i found out and I’ve had to just collect over the years. Sadly we don’t fit in the system’s “box” of normal easily, which we know they love! Just happy to help the struggle 🫶🏼
Hey giving the fact that you have seen the both sides of natural and western medicine where do you stand on vaccines for your daughter? I would love your take on it please 🙏
I discussed this in my newsletter last week (answering 29 questions). But we’re opting out of shots. 💕
Baby weaning journey tips!
Thank you!!! I’ll keep this one on the list for once I personally go through weening Celia. 🫶
Curious about your original diet intervention and how you modified carnivore. Been diagnosed with PMDD, fibromyalgia and arthritis. I could def do carnivore for a few months but I'm afraid I'll be stuck, i.e. that the elimination will over-sensitize me to all plants forever. Would love to read more about your experience.
Oooof I totally get the fear of sensitizing your body. My personal experience is that I personally just stopped being used to feeling horrible. Like the experience/symptoms when I eat certain things is the same, i just am no longer used to feeling horrible. I hope that makes sense.
So sorry to hear you’re dealing with issues of your own!
I’ve been misdiagnosed so many times that I don’t even know what to believe I have or don’t have anymore. I am currently in the midst of a huge (Lupus?) flare. Will be following along because finding good recipes that are tasty, not too much work, and my entire family enjoys has been exhausting.
I know the feeling. I almost didn’t even want to share this information because I’m sure in a couple years I’ll find something else out. But hey, that’s the journey. So excited to share recipes with you!